Bio

Our journey

Cameron Jones is not just a beacon of resilience in the face of adversity; he is a testament to the power of love, family, and the human spirit's indomitable will to persevere. Born in 1989, Cameron's world shifted profoundly in 2020, a year that was pivotal for him both personally and medically. It was the year he received a diagnosis that would change his life and the lives of his loved ones: Amyotrophic Lateral Sclerosis (ALS), a progressive neurodegenerative disease that attacks the nerve cells responsible for controlling voluntary muscle movement.
Cameron's journey toward this diagnosis was fraught with challenges. The early signs, which began with tremors in his hands in 2013, were initially dismissed by healthcare professionals as minor concerns attributed to sleep deprivation and poor nutrition. This dismissal is a common narrative for many young individuals facing serious health conditions, leading to prolonged periods of uncertainty and misdiagnosis. However, as Cameron's symptoms evolved and his physical strength began to wane, the urgency for answers led to further investigation. After an arduous two-and-a-half-year journey filled with tests and consultations, the devastating diagnosis of ALS was confirmed.
Despite the hardships faced in his diagnosis, 2020 also marked milestones of joy and new beginnings for Cameron. In the same year, amidst the tumult of his ALS diagnosis, Cameron and I solidified our bond through marriage, embracing each other in sickness and in health. Our commitment to each other was further blessed with the arrival of our first child, a beacon of hope and a symbol of our love and resilience in the face of life's unpredictabilities.
The dualities of 2020, with its profound lows and highs, shaped Cameron's resolve and our shared path forward. The experience of battling ALS, compounded by the challenges of contracting COVID-19 twice, which briefly accelerated his symptoms, only strengthened our resolve. Yet, through determination and the support of medical interventions, Cameron's condition has reached a plateau, offering us a semblance of stability in our journey together.
Our encounters with individuals and organizations dedicated to supporting ALS patients illuminated the difference that compassionate support can make. Inspired by the generosity and guidance we received, Cameron and I were driven to give back to the community that had supported us through our most challenging times. The inception of our nonprofit was born out of a desire to extend the same level of support, comfort, and resources to others navigating the complexities of chronic illness. Our aim is to ensure that no one has to face their journey alone.
Cameron Jones's story is a narrative of courage, love, and the enduring strength of the human spirit. It's about facing the darkest of diagnoses with the light of family and the power of community by your side. Through our nonprofit, we are committed to fostering a supportive network for those affected by ALS, embodying the values of perseverance, compassion, and community support that have been our guiding lights. Cameron, my husband, the father of our child, and a fighter of ALS, continues to inspire all who know him, championing a legacy of hope and resilience for our family and for the community we serve.